For Professionals: Regional Center Providers

Persons with Prader-Willi syndrome will depend upon the supports and services provided through California’s Regional Center system throughout their lifetime. In order for Regional Center case coordinators to best support their client/consumer and his or her family, they must be familiar with the unique challenges that PWS poses during every stage of development of the individual’s lifetime.

The Prader-Willi California Foundation can provide telephone or on-site support upon request.

Eligibility Information

Prior to age 3 years, infants with PWS will qualify for Early Intervention services because PWS is an established risk condition (chromosomal disorder) and ’causes’ significant delay in multiple areas of development including adaptive development (feeding difficulties), physical and motor development, communication development (limited sound repertoire), cognitive development, emotional-social development.

From age 3 years, persons with PWS will qualify for Regional Center services by virtue of Mental Retardation, Autism, Epilepsy/Seizure Disorder, and/or the Fifth Category because the syndrome causes substantial disability and significant functional limitations in the areas of self-care, receptive and expressive language, learning, mobility, self-direction, capacity for independent living, and economic self-sufficiency.

Articles & other resources are provided below by category:

Medical Alert Booklet

Brain & Behavior DVD

Food, Behavior & Beyond DVD

Residential Staff Training DVD

Understanding the Student with PWS: Strategies for Success DVD

Book – Management of Prader-Willi Syndrome

Book – Supporting Adults with PWS in Residential Settings

Book – Supported Living Care Plan for Adults with PWS in Placement

Book – Best Practices Guidelines


Make Connections

PWCF maintains online and in-person Support Groups for parents and professionals.

PWSA (USA) maintains several Facebook support groups.


Referral Lists:

 

Health Care Providers Referral List

PWS Residential Facilities Referral List

These lists are for information and referral purposes only and are not intended to serve as a recommendation