People who have Prader-Willi syndrome typically have deficits in their ability to deal with others. They may stand too close, miss social cues, and struggle with what to say. However, if you take a little time you will be rewarded with some very delightful interactions. Children with PWS particularly struggle with peer relationships. The following tips are ways you can help:
- Allow extra time for the individual to respond; it may take them a little longer to collect their thoughts
- Keep in mind that people with PWS take things very literally; they may have problems if you use sarcasm or idioms
- Include the individual with PWS in games, outings, etc.
- Facilitate interactions with other children
- Games or structured activities work better than open play activities
- Teach your children to be patient and encourage them to play with the child who has PWS
PWCF maintains online and in-person Support Groups for parents and professionals. Friends and family are welcome too.
PWSA (USA) maintains several Facebook support groups.