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Prader-Willi
California Foundation
Walking
to Stop the Hunger
10th
Annual Awareness & Fundraising Event
Central
California – April 24, 2010
Northern California – April
25, 2010
Southern California – May 2, 2010
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Prader-Willi
syndrome (PWS) is a complex birth disorder that affects appetite,
growth, metabolism, cognitive function and behavior. Normal satiety
(the feeling of fullness after eating) does not exist. Undiagnosed,
unmanaged and without 24/7 supervision, Prader-Willi syndrome leads
to obesity-related illnesses and premature death.
Although research has made great strides in our understanding of PWS,
there is no medication yet to control or even reduce the insatiable
appetite, and no treatment for all of the behavioral symptoms. There
is no cure, but with your help there is hope!
This 10th Annual Walking for Prader-Willi Syndrome awareness and
fund raising event directly benefits the programs and services provided
by Prader-Willi California Foundation, the only organization exclusively
serving Californians impacted by Prader-Willi syndrome. Please help
us raise the funds needed to provide education, support and advocacy
services to individuals and families impacted by this life-threatening
and all-too-often devastating disorder.
A fundraising site is available to help families reach out
more easily to ask for support or sponsorship from extended family
members, friends, work associates, teachers, therapists, physicians,
caseworkers anyone on your child or adult childs
treatment team. This site allows you to create your own personal
web page, upload your own photo, and tailor your appeal and make it
more personal and meaningful. To learn more about how to use the
site, visit the pages on the left.
Prader-Willi California Foundation is a 501(c)(3) public charitable
organization TIN 95-3480752. All sponsor donations are tax-deductible
to the extent permitted by law. Funds raised through the Walking
for Prader-Willi Syndrome events benefit persons with PWS and
their families by providing:
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Education,
support and advocacy to families, schools, medical and allied
health professionals |
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Residential
and vocational program assistance |
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Statewide
educational conferences and training ‘ Specialized publications
including articles, brochures, DVDs, and a quarterly newsletter |
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Public
awareness programs and activities |
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Support
of state and national research |
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And much, much more |
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